Lucy (10) and Winnie (5) Ryan have an extremely rare form of mitochondrial disease which is a progressive disease that causes physical, developmental, and cognitive disabilities. Experts have indicated that less than 20 people in the world are currently known to have mito with the FDXR gene mutation. Given the rarity of their condition, medical research is in its infancy. Lucy is now legally blind and is starting to lose her hearing. Winnie also cannot walk on her own, is developmentally delayed, has limited speech, and shows other symptoms similar to Lucy. Kevin and Maura Ryan face numerous medical expenses due to testing, treatments, and hospital stays. Both girls undergo physical, occupational, speech, and vision therapies. They require wheelchairs, hearing aids, and vision magnifier.
Watch the video of their story here